Comments on: Big Brother’s Reggie: “I’m Going Blind” http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/ The magazine for a new generation of parents Fri, 20 Nov 2009 18:25:12 +1100 http://wordpress.org/?v=2.8.6 hourly 1 By: Kirsty Downes http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/comment-page-1/#comment-6018 Kirsty Downes Mon, 06 Jul 2009 14:33:07 +0000 http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/#comment-6018 Please contact me would be much appreciated, would love to hear from those who have similar conditions! Please contact me would be much appreciated, would love to hear from those who have similar conditions!

]]> By: Kirsty Downes http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/comment-page-1/#comment-6004 Kirsty Downes Sun, 05 Jul 2009 12:34:49 +0000 http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/#comment-6004 Hey I was diagnosed when I was 21 it was devastation I was told I couldnt have children a blow out for me I so much wanted them. Im now 33 years and have a daughter 8 and 1/2 years and a son 6 and is wanting to have another which hopefully come true. Im saying that things can be done and the most support you can get is most helpful. Life has changed for me I now have a guide dog of 6 mnths which has does wonders. I know it sucks to have this condition on top I have an hearing impairment which is called Ushers Syndrome combined with RP. I hope you may have some contact as I am a mother whos also struggle with everyday life and most certainly heaps of frustration!!!! Kind regards Kirsty Downes greensborough VIC Hey I was diagnosed when I was 21 it was devastation I was told I couldnt have children a blow out for me I so much wanted them.

Im now 33 years and have a daughter 8 and 1/2 years and a son 6 and is wanting to have another which hopefully come true.

Im saying that things can be done and the most support you can get is most helpful.

Life has changed for me I now have a guide dog of 6 mnths which has does wonders.

I know it sucks to have this condition on top I have an hearing impairment which is called Ushers Syndrome combined with RP.

I hope you may have some contact as I am a mother whos also struggle with everyday life and most certainly heaps of frustration!!!!

Kind regards Kirsty Downes
greensborough
VIC

]]> By: Amber Robinson http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/comment-page-1/#comment-544 Amber Robinson Tue, 30 Sep 2008 11:21:17 +0000 http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/#comment-544 Hi Clare, Unfortunately I don't have the contact details for Reggie, here is a clinic I found in the US which treats this condition: <a href="http://www.stemcellpharmainc.com/.">http://www.stemcellpharmainc.com/.</a> Good luck. Hi Clare,

Unfortunately I don’t have the contact details for Reggie, here is a clinic I found in the US which treats this condition: http://www.stemcellpharmainc.com/. Good luck.

]]> By: clare http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/comment-page-1/#comment-543 clare Sun, 28 Sep 2008 12:27:00 +0000 http://www.babble.com.au/2008/08/05/big-brothers-reggie-im-going-blind/#comment-543 hey reggie,, my 21 year old also has RP .. so does my brother.. we are desperate to find some help.. also heard about stem cell or gene therapy overseas that might help.. but where..?? China Germany UK .. ?? could you write me,, and tell me where you are going..?? what have you heard.. my son also has cataracts that have to be removed next month by professor Coroneo.. hey reggie,, my 21 year old also has RP .. so does my brother.. we are desperate to find some help.. also heard about stem cell or gene therapy overseas that might help.. but where..?? China Germany UK .. ?? could you write me,, and tell me where you are going..?? what have you heard.. my son also has cataracts that have to be removed next month by professor Coroneo..

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